I haven’t known what to say for awhile. I feel like I never know what to say. I don’t like to dwell on hard things, but I guess hard things were what started this blog in the first place. I was talking to an old friend a few days ago, and she asked me where we had been, and told me that how important this blog had been to her, and how it was time to write again.
Originally when I started this space, it began out of a scary worry, and looking for answers. Back then, there were about 80 families with an FPIES diagnosis in the U.S, now there are hundreds. We didn’t know what was going on, and I was scared all the time. Wyatt is six now, and everything has changed, and nothing has changed.
He is amazing, and funny, and so positive. He still is never more than a couple inches away from me, and still in love with his sister. He is such a smart boy, works so hard in therapy every week. He’s gotten a few more firm diagnosis’s since we started out in this journey, and still so much we haven’t figured out yet, but each and every day with him is the best day of our life.
The older I get, the more I realize that everyday we are alive is an absolute miracle, and such a blessing.
As an added funny, he licked me right after I took this picture, he claimed he was trying for a kiss. I don’t buy it, he licks everything. gotta love sensory seekers.
I’m going to try and know more what to say, or at least, be here more. But in the meantime, we are still here, He is still amazing, and life is a miracle.